Sister Strong Survivors

Just seems appropriate to repost what was my celebration of them during this past Blood Clot Awareness Month. So, once again, DRUM RO

PLEASE………. I BRING YOU THE TRUE MEANING AND VISIBILITY OF STRENGTH….

SISTER STRONG SURVIVORS!!!!!! Sister Strong Survivor Songs – Check Out My YouTube Survivors’ Playlist

Oh yeah, and of course….. ONE ROYAL SON!!!!!

Living ~ Not Just Surviving  

Celebrating Blood Clot Awareness Month by celebrating those who have been with me from the beginning of THIS recovery. Who have been your touch stones through thick and thin, dark and light, tears and laughs, anger and joy. Although just some of my “Sister Strong Survivors” and my son (of course), I celebrate ALL my fellow survivors… For you are strong, able, and loved. Remember… Life is for Living ~ Not Just Surviving…

Live every moment – love every day
‘cus before you know it your precious time slips away.
Live every moment – love every day
’cause if you don’t you might just throw your love away.

I walked for seven miles this mornin’. footprints in the #sand.
#Washed away without a warning when the water hit the land.
But I will #walk on ’til I can no longer stand.
I’ll take you by the #hand and we’ll…

Live…

View original post 119 more words

WORLD THROMBOSIS DAY ♥♥♥ FREE DVT/PE PATIENT WEBINAR

  Livingnotjustsurviving.com

WDT 2014 United States Participating Partner

More than 175 thrombosis and cardiovascular societies, associations and federations strong (and counting) in 60 countries are participating in World Thrombosis Day

\\

 First I HAVE to say “Thank You” for not only for  bringing medical awareness  and offering education on Thrombotic disorders, issues, and treatments on a global scale to Healthcare providers, but in that the same was offered to DVT/PE patients as well.

I was an attendee of the free DVT/PE webinar sponsored by three nonprofit organizations whose missions are dedicated 100% to clotting/thrombotic/emobolitc research, information, support, and advancement in their training of awareness and education.  The physician was very informative, while at the same time, for me, it was also comprehendable.  There were several topics covered within the presentation itself that had been concerns of mine. At the conclusion, there was an allotted time for any additional questions and/or concerns by the attendees.  There were several good inquiries from a wide spectrum of topics, yet he answered each one of them in turn. I was very impressed with this opportunity, and would hope there may be more to come in the near future.

 

 

 

New Scientific Review Confirms Blood Clots in Leg and Lungs (VTE)… — CHAPEL HILL, N.C., Oct. 9, 2014 /PRNewswire-USNewswire/ —

World Thrombosis Day on October 13

New Scientific Review Confirms Blood Clots in Leg and Lungs (VTEardiovascular Killer Globally –

Is Leading Cause of Death and Disability in Hospitals

CHAPEL HILL, N.C., Oct. 9, 2014 /PRNewswire-USNewswire/ — While the world’s top two cardiovascular killers – heart attack and stroke – are global health priorities, the No. 3 killer, venous thromboembolism (VTE) or blood clots in the leg and lungs, has remained largely unaddressed and under-recognized by the public, according to the most comprehensive scientific review of the global burden of VTE ever undertaken and a global public survey. To address this disconnect, the International Society of Thrombosis and Haemostasis (ISTH) is leading a global effort together with more than 175 health/medical and patient organizations around the world to launch World Thrombosis Day (WTD), focused initially on increasing public and health professionals’ awareness of potentially deadly blood clots in the leg and lungs, the risk factors, symptoms and the importance of prevention.

#StrokeChat Event BTYB American Stroke Association/Power To End Stroke

#StrokeChat Event

                                #StrokeChat Event
                        August 28 ~ 2:00-3:00 p.m. CST

If you should happen to have the time available to you, this is something I DEFINITELY recommend ‘attending’ no matter whether you should participate or stalk. I only say this as it’s much better to be aware and have information that may (hopefully) NEVER be needed, then to be made INCREDIBLY aware through personal experience. Hope to see you there.

Kindness Or Disservice: Maybe It’s Both

Unfortunately, or fortunately, I’ve come to know that I’m not the only one who does this. It’s a common thread that links the majority of us that were fortunate to survive our embolism experiences. It’s what we believe as being a kindness to those that surround us as a way of keeping their minds at more at ease knowing that they are already overwhelmed, confused, and concerned for our well being. Only to then have major melt downs that can range from anger to sadness and loss, and may even go as far as self loathing/pity due to no longer being what we were before and trying to process, comprehend, and embrace the concept that we will never be again.

This brings up the question of, that, in reality, are we really being kind and considerate, or are we doing them a disservice by not sharing what’s going on both mentally and physically after such life changing events?

What do you think? Kindness or disservice maybe both?

Please share your thoughts and/or experiences regarding this subject.

Warrior Walk

My ‘thank you’ to all of you who have been with me from the beginning and stuck with me through everything this last 15 mos…

I AM A WARRIOR!!

Like a Warrior that fights
And wins the Battle
I know the taste of Victory
Though I went through some nights
Consumed by the shadows
I was crippled emotionally
Somehow I made it through the heartache
Yes, I escaped.. I found my way out of the #darkness…
Kept the faith

When the River was deep
I didn’t falter
When the Mountain was high
I still Believed
When the Valley was low
It didn’t Stop me
I knew you were waiting for me
~ George Michael

March =
Blood Clot Awareness Month

Royal’s Empire State of Mind

Andrew ~ Empire State Of Mind

Yeah…so proud I’m leaking out of my eyes!! He’s made it safely to NYC and I am now just waiting for the text/call letting me know he’s at the apartment that just so happened to open up two weeks early. So no couch hopping for the next 15 days either!! I gotta get a kleenex…

THIRD GENERATION SURVIVOR!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

 

 

 

 

Related articles

• Royal’s Empire State of Mind (livingnotjustsurviving.wordpress.com)
• One Thing You Must Do In: New York City (multiplyandivide.com)
• New York, New York (humandynamics.wordpress.com)

The Color Run That Wasn’t…

tHe cOLoR rUN 2013

tHe cOLoR  rUN 2013 

The Color Run ~ Springfield, MO April 06, 2013

SPRINGFIELD, MO – Downtown Springfield is a little more colorful today. Known as the happiest 5k in the world, the travel Springfield, and the citizens responded by coming out in the thousands. With a message of healthy living, happiness, and giving back to the community, the Color Run is taking the nation, and whole world by storm. In the span of 15 months, the race has grown to be featured in over 60 cities and having over 600,000 participants. Un-timed and not caring about how fast you run, this 5k is a family-friendly outing to remember.

Well……at least I have proof that I was actually going to participate….It arrived this week from my sister….

AND I get to wear this really cool bracelet that reminds me WHY I didn’t get to run in the first place….as you ALWAYS have to learn to walk before you can run…..

The Color Run ~ Springfield, MO April 06, 2013

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Related articles

• Holy Heat & The Color Run *Giveaway*!! (livelearnloverun.wordpress.com)
• The Color Run (livingthegoodlife12.wordpress.com)
• Color Run brings race into hue (kansascity.com)
• The Happiest 5k on the Planet (bigbrightsparkly.com)
• So much fun at The Philly Color Run (solefulmamas.com)
• I’m registering for The Color Run, the Happiest 5K on the Planet, are you? (raisingthreesavvyladies.com)
• The Happiest 5k on the Planet! (girlrunningcrazy.com)
• Run For Fun: 5 Of The Funnest 5-K Runs (blackamericaweb.com)
• I color ran! (irreverentglam.com)
• The Color Run Singapore 2013 (Registration) (isaacloo.wordpress.com)

 

It’s FINALLY HERE!!!!

Living ~ Not Just Surviving New Header Banner for out new home page!!!

We now have a new home page specifically designed for LNJS!!! And, yes, Unicorns have been included….along with several of my friends!!! 

 

Would love to hear back on impressions, thoughts, etc so we can get this tweaked and running smoothly.  Any feedback would be great….but GREAT feedback would be BETTER  🙂

 

So….now…gotta give a shout out to the ones that have actually not let me REALLY be alone when I want nothing but to sink into the abyss of the internet and skulk…

 

Just like them, their profiles and projects are as unique and varied as they are. Check out their ‘Social’ projects/profiles here:

 

 

 

 

 

These are just some of the friends and supporters I’ve had and made recently. They’ve all brought something different into my life with their views, honesty and friendships. They’ve each touched and changed, even if ever so slightly, my way of taking in the world around me. We should all be so lucky, and I hope you that you are.

 

Happy Saturday everyone!!!!!

 

Thank You

On Top Of The World – Imagine Dragons
Survivor Strong a video by Willoweagle

As I am sitting here going over the posts, stats, and comments of this blog over the past week, I am not only flattered and touched, but inspired again.

In sharing my son’s story, it was quite the decision. There were many things to consider. The first being in how would he respond. The second was would anyone be interested. On both, I was proven incorrect.

My son did respond, but not exactly the
way I expected. It was a totally positive one. I had expected to defend, in some degree, my reasons about why I had.  I was prepared to do just this on receiving his first call after posting. I had everything ready. None of it was needed. For that, I say thank you ♡.

As for my second concern, I must honestly and wholeheartedly say I’m flabbergasted and sincerely flattered!!!

For these posts to not only be a series and so personal, yet posted during the middle of the week, I am amazed and humbled by what the stats have proven it to be an unfounded and near grossly ridiculous.

I would be terribly remiss in not thanking you – the reader – in taking your time which there is so little of in our busy hectic day-to-day schedules for reading and taking this journey. It is because of you that I share. Support and understanding during a difficult, life changing experience is all anyone can ask for and on receiving it, a great relief. There are no masks here. This is real. This is life. Thank you.