Tag Archive | pulmonary embolism

Lonely In A Crowd


Months ago my ‘first’ charitable 5k run/walk was a goal I set my mind to. Unfortunately, it will not be achieved. As of my last orthopedic appointment, I am no longer to do 5k runs or even walks. Even bicycling is months away. Due to the damage my knee has sustained as a result of the wreck, I am now limited to ADLs ONLY for the purpose of ‘saving’ not just one but both knees for as long as possible. The goal is that my knee will ‘last’ for 12 months before becoming completely immobile.

I have been very private in sharing this as it’s been very difficult to take in. Although I’m still trying to take it all in, I’ve taken to sharing this publicly in MY time. I am hoping that this will answer at least one or two of the questions that have come my way as of late that I have been reluctant, and, well honestly, not ready to answer.

For me, this was another blow to the several over the last 15 months. Another total life changing challenge, psyche change, self esteem/worth damager, along with a significant depression inducer.

I also want to thank everyone for their care, concern, worry, support, and, yes, maybe even the hugs given since learning this prognosis six weeks ago. It’s once again shown me that although I may FEEL lonely, I’m NOT alone. It is past time I said much, and now I am. THANK YOU!!

#fbf #flashbackfriday #0 #greatstrides #cysticfibrosis #greatstridesNEAR #friends #support #fundraiser #charity #run #walk #survivor #pulmonaryembolism #DVT #summer

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Six months pre-PE (pulmonary embolism)

First goal of 2012. I had already lost 30 lbs in my journey to become healthier and would lose another 20 in the months that followed. Although tired, I was both happy and proud at what i had accomplished. 6 months pre PE

2014 First 5k Goal:

http://www.nfmidwest.org/event/color-me-a-cure-presented-by-alexs-angels/

Sidney Penner’s Blood Clot Story – NATT Organization


Another story shared by a fellow survivor who I have had the opportunity meet and the pleasure to get to know over the past year. Sydney’s story can now be viewed and shared thanks to the NATT Organization at Stop The Clot

Here is an introduction an excerpt from Sydney’s story. Thanks so much, Sydney, for your courage in doing so.

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Sydney Penner

My life changed drastically on November 15, 2012. I was diagnosed with an Acute Pulmonary Embolism (blood clot in the lung) in my right lung.

I remember the day before. I was walking from my college class to my car and running out of breath. This was unusual for me because I was always out running and exercising and I was healthy. The next day I remember pain: when I would sit there was the pain; when I would get up there was that pain; and later that night when I was laying down, this huge amount of overwhelming pain just shot right through me, I couldn’t breathe or sit or lay down. I was crying because I was in so much pain

To read Sydney’s entire story, please follow this link to Stop The Clot – Sydney Penner

Serena Williams on David Letterman – Full interview, 22 August, 2013 – YouTube


Paste a Video URL

I don’t usually actually “watch” late night TV as much as listen to it while staying busy with other things, but tonight during The David Letterman Show I realized it was Ms. Williams that he was interviewing. Yes, she’s an incredible athlete, but that wasn’t what caught my attention. Here she speaks about her recent health issues and on a side note how it affected her mentally as well. Here is the link to the entire interview, but the point in case begins around the 8:25 mark. Follow this link to listen to the shorter version and begins at this point:

The Color Run That Wasn’t…


tHe cOLoR rUN 2013
tHe cOLoR  rUN 2013 

The Color Run ~ Springfield, MO April 06, 2013

Well……at least I have proof that I was actually going to participate….It arrived this week from my sister….
AND I get to wear this really cool bracelet that reminds me WHY I didn’t get to run in the first place….as you ALWAYS have to learn to walk before you can run…..

 
 
 
 
 
 
 
 
 
 
 
 
 
 
Love in italian
 

 

New Fangled Pen Pals


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© 2013 Willoweagle (unpublished)

The inspiration for the above written poem came with the arrival of these beautiful flowers sent from two wonderfully inspirational, hysterically looney, super supporters,  who have been there for me the past year whom I’ve never met face-to-face, but we’d know each other anywhere.

Blown away, overwhelmed, amazed

Got 'em snowed!!

Smiles in a Vase

Ohhhhh…if you only knew how right thezs two got it….
Ok…so I’m REALLY gonna go small town on ya…READY?!?!?!

HERE IT GOES!!!!
.
The flower shop you ordered those from, just HAPPENS to be owned by one of my best friends/ex-daughter-in-law’s (we’re 3 months 16 days apart…sigh….I’m older..and we graduated HS same year)…hold on

mother-in-law!!!
.
I had spoke with her about 6 weeks ago and we were to meet up for lunch…we hadn’t laid eyes on each other in nearly a year…I KNOW!!

ANYWAY…The plan was to change that..BUT she had some medical issues (she has Crohn’s) that needed be dealt with…then it was MY turn…

So imagine how delighted I was when I thought she’d stopped by quick during a delivery AND brought me flowers…THEN found out she was delivering them from YOU GUYS!!!

It was better than any Publishers Clearing House Ed McMahon Presentation could ever make up!!!!

Made my day!!!!

Willoweagle

It’s FINALLY HERE!!!!


Living ~ Not Just Surviving New Header Banner for out new home page!!!

It’s FINALLY HERE!!!!! 

We now have a new home page specifically designed for LNJS!!! And, yes, Unicorns have been included….along with several of my friends!!! 
 
Would love to hear back on impressions, thoughts, etc so we can get this tweaked and running smoothly.  Any feedback would be great….but GREAT feedback would be BETTER  🙂
 
So….now…gotta give a shout out to the ones that have actually not let me REALLY be alone when I want nothing but to sink into the abyss of the internet and skulk…
 
Just like them, their profiles and projects are as unique and varied as they are. Check out their ‘Social’ projects/profiles here:
 

A Beautiful Mess Blood Clot Recovery Network

Surviving A Silent Killer

 

 

 

 

These are just some of the friends and supporters I’ve had and made recently. They’ve all brought something different into my life with their views, honesty and friendships. They’ve each touched and changed, even if ever so slightly, my way of taking in the world around me. We should all be so lucky, and I hope you that you are.
 
Happy Saturday everyone!!!!!

Willoweagle

 

Pillow Talk….If Only


Pillow Talk

This week was my 6 month anniversary since my pulmonary embolism. Yet, I didn’t even realize it until Thursday night….and THEN the party began!!! I saw some old friends I hadn’t seen in quite some time. With being one who talks and socializes a lot, I have only a very few close friends and family that REALLY know me or that I even let in emotionally. That being said, it was still a bit bewildering to me that no one had commented about it. It hadn’t even been remembered, not even my me  until two days after. Surprisingly, it was my Mom that reminded me of it. With my legs propped up as high possible, it was the pillow they were on that was the trigger.  It had been hers. It was with her through nearly all the times she suffered through her blood clots. This pillow is nearly as old as I am and it was one of the first things I acquired after she passed. It was only fitting that I should give it a home with me where it would be used in the fashion it was accustomed to. Now, if only this pillow could talk……..
 
That’s when it happened….the first guest to show up to my party was Mr. Self Pity himself….strutted on in like he owned the place!! ‘Well HELLO BABE….Missed me?’ Every bit of strength I had at that point eroded. I wept…just like the girl I am, I wept!! Thoughts of the last six months flooded my brain. Then the memories of previous experiences when the recovery was so much quicker, easier, and kinder. The set back from the week before with legs swollen the size of tree trunks and them only being about half that size now hadn’t helped matters any either. Mentally, I can leap off tall buildings, fly to the moon and back, but physically, I can barely walk across the room some days, my legs don’t hurt although carrying around the extra weight does tire me out quickly, and I can’t do everything I usually do during the summer. I’m just HERE!! And WHY?!?!?
 
The Agony of “De-Feet”
 
Next to show up was Self Loathing….oh, he’s a sly one…Looking down at my legs, I hated them for failing me. I hate how they look. I hate that I can’t motor them some days and others they are stinging, flaming, itching attachments that I are EXASPERATING!! Just when I think I’ve made it back to ‘normal’, my body reacts and just laughs like I’ve lost my mind..and when it happens, I nearly do. 
 
Then came ANGER!!! I’m angry that I’m not back to the ME I was before all this happened. I’m angry that I have to rely on others at times to do simple things that I should be able to do for myself. I’m angry at having to learn how to deal and cope with yet another facet of this STUPID disease. I’m angry that it’s taken from me. I’M ANGRY!!!!! I’m allowed to be and I have a right to be, but I also know that it’s ok, but to brush myself off and I’ll get back up only to gimp down this path of recovery until I reach the finish line.
 
This weekend though has brought me another perspective on this experience. I have SUPPORT!! Although it may not come in the packages you thought it would, it DOES eventually show up and I’m grateful for it. In the last two months alone, I have had the privilege of meeting some of the most amazing, wonderful, and MIRACULOUS women that it is MY honor to know. Some are bloggers, some are healthcare workers, some are students, but we are ALL survivors!!! If it hadn’t been for long texts, chats, comments, and photos that took place some very long nights, I don’t know that I would have been as open and sharing as I am now. Actually, that’s not true, I KNOW I wouldn’t be. It’s because of them that I took a thought of becoming more open with sharing and support that it grew from a thought, to a blog, and within the last three weeks, both Facebook and Twitter have been graced with my presence. 
 
 
This path I’m on isn’t as easy or rebounding as it’s been previously, but it has brought me friends that understand, commiserate, and get angry with me because they know. It’s brought caregivers a glimpse into our world of being caregivers to them by saying “I’m Fine”, ‘It’s Ok”, and more so that THEY don’t give up parts of themselves for us. Only to be the recipients of our gross temperaments once we do have that frustrated breakdown where everything and everyone is the enemy. It’s also brought me education in the form of our commonality and our differences when it comes to our clotting disorders. We are a very UNIQUE and SPECIFIC group of blood odd-balls all looking for the same thing….a cure….
 
To my friends and my followers…you amaze me every day and bring me such joy with your comments…It’s not MY strength that gets me through,  it’s the strength that YOU give to me.
 
Willoweagle 
 
Shadows of Life
 
 
 

 

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Living Your Best Life While Taking Blood Thinners


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Blood thinners??? FOR LIFE??? I was only 19, had just given birth to my son, was experiencing my first DVT (arterial no less), and was trying to come to terms with the fact that I was going to be just like my Mom! She had suffered with numerous DVTs (at least one year) from the time I was 5 years old. I was aware of what was in store for me. There wasn’t a medical diagnosis for whatever this blood disorder was, I knew what the treatment was….RAT POISON…COUMADIN!!! I had seen what that entailed. Doctors office visits for regular INRs, changes in doseages consistently, and the bleed outs and bruising. I didn’t want anything to do with it! Then 20÷ years later, I threw yet another DVT while therapeutic. New doctor, new technology, new medication…Lovenox. I took this for a year religiously while suffering consistent sidhe effects of nausea and hair loss. Then another new medication….Arixtra. what a wonderful change. No more side effects! Instead, again while within treatment guidelines, I threw the worst and most clots ever. A pulmonary embolism saddle clot along with bilateral lower extremity DVTs. Currently I am on Xeralto, another new medication on the market, and although its only been a month, it seems to be doing its job…I hope. Here is a very good article from one of my favorite resource sites regarding living with blood thinners. What blood thinners are you on? Are you suffering from side effects? Do you get frustrated

http://www.stoptheclot.org/News/article346.htm#.USMG4JG3PJs

♥ Words To Run By ~ Meet Sara ♥


♥Meet Sara♥

Another survivor shares her story of inspiration, strength, and overcoming the challenges of living with a blood disorder.

How does she heep her wits about her? She RUNS!

I want to introduce you to Sara. A wife, a Marathon runner….A SURVIVOR!!

Sara’s Story ⇨ Survivors Share

I’m a runner, writer, dog-mom, and self-proclaimed hot sauce connoisseur.

I’m also a survivor raising awareness daily about the devestating effects of blood clots.

Words To Run By

My story is not that different than anyone else. I graduated from college, started my first real job as a child welfare caseworker – a field completely unrelated to my degree, of course. I got married on 07/07/07 and we adopted two dogs – Grace and Sadie. Back then, I would have told you I lived a great life, until I discovered – and not without a whole lot of things going really wrong first – that there is more to life and more to me. I wanted more, I needed more, but I had no idea where or with what to start.  Continue reading