Tag Archive | clotting

Explosions Of Change 💥


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☆ Red, White & BOOM ☆

1GB Malden Event Page

Of the many changes that have come my way over recent months, one was the opportunity offered to work with my home church’s outreach and media committees this past January. Since that time, there have been several events planned, media blitzed and pulled off without any major noticeable general issues (only ones that those of us behind the curtain would even notice had occurred).

That being said, the BIGGEST of these events is now just DAYS away! As with any well planned event, there’s the frantic frenzy of finally pulling everything together and having it all fall into place just as planned. It’s SO GOOD to once again be an active, contributing, and productive part of something again.

The hardest part was actively making myself get out of the house, pull myself up, and getting a grip. I then allowed myself to acknowledge and accept things as they are now, letting go of what was, and learned to embrace, accept and adjust to things accordingly. In doing that, I’m considerably more active and able to do things then I was just over a year ago.

I’m soooooo excited to also be physically able to help with prep, set up and see everyone! So, if you don’t have plans for the 4th, YOU DO NOW!!!!

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☆ Red, White & BOOM ☆

Official Facebook Event Page

 

 

 

 

 

 

 

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Sister Strong Survivors


Celebrating Blood Clot Awareness Month by celebrating those who have been with me from the beginning of THIS recovery. Who have been your touch stones through thick and thin, dark and light, tears and laughs, anger and joy. Although just some of my “Sister Strong Survivors” and my son (of course), I celebrate ALL my fellow survivors… For you are strong, able, and loved. Remember… Life is for Living ~ Not Just Surviving…

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Sister Strong Survivors (and The Kid)

Live every moment – love every day
‘cus before you know it your precious time slips away.
Live every moment – love every day
’cause if you don’t you might just throw your love away.

I walked for seven miles this mornin’. footprints in the #sand.
#Washed away without a warning when the water hit the land.
But I will #walk on ’til I can no longer stand.
I’ll take you by the #hand and we’ll…

Live every moment – love every day
‘cus before you know it your precious time slips away.

There’s #water in the #wind tonight.
There’s a #chill in the air.
It’s coolin’ down my #skin tonight
Soakin’ through your #hair.
There’s #warmth enough within’ tonight
For both of us to share.
We can take it anywhere. and we’ll…

Live every moment – love every day
‘cus before you know it your precious #time slips away.

Sometimes I wish we could take a #trip far away.
Leave all this #trouble and #heartache and pain for another day.
I will #search for that place but ’til I find it all I can say is…

#Live every moment – and #love every day

#REOSpeedwagon

Shop The Clot – J Wells Brewery Event


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Lisa

Wishing I was in Colorado at my friend Lisa ‘s and her husband’s brewery tonight to help celebrate and pay forward everything she’s overcome and then the amazing achievements she’s accomplished this past year. I can honestly and wholeheartedly say that she is one of my Sister Strong Survivors who, without having met, my current recovery would not have been the same. Instead of letting me be ‘me’, she looked past that and was determined I was to be her friend and she didn’t let me stop her even though I did my best to. Despite my many warnings, massive moodiness, lengthy self imposed alone times, social ‘everything is fine’ mask wearing routine desperate attempts at not allowing anyone into the inner circle to see or know the ‘real’ me, she didn’t give up. For that, I’ll always be indebted and grateful. Congratulations!!! You deserve every moment tonight and remember… Take a moment… Breathe in…. Breathe out… REPEAT…

P.S. For all those who were concerned regarding how I would cope with recovery after my PE both mentally and physically having known how difficult it had been previously, this is one of the Sisters you should thank for the complete 180 this time. — feeling hopeful with Lisa Cowan Wells at J Wells Brewery.

Now for the shameless plug…. J. Wells Brewery didn’t end their fundraising efforts when the party did. They will continue to raise charitable funds for the National Blood Clot Alliance with a portion of their proceeds from the sales of Lisa Red Beer and T-Shirts. T-shirts can be purchased online at

I WANT MY T-SHIRT!!!

and information on how to purchase Lisa Red check out

J Wells Brewery – Boulder, CO

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Lisa Red Beer T-Shirt

Also, whether you are a Survivor, family member, caregiver, or just want more information given by survivors themselves, be sure to check out the Facebook survivor group that was founded, continues to be operated, and lead by Lisa at Surviving The Silent Killer or follow the link on my Facebook page at Living~Not Just Surviving.

♥ Words To Run By ~ Meet Sara ♥


♥Meet Sara♥

Another survivor shares her story of inspiration, strength, and overcoming the challenges of living with a blood disorder.

How does she heep her wits about her? She RUNS!

I want to introduce you to Sara. A wife, a Marathon runner….A SURVIVOR!!

Sara’s Story ⇨ Survivors Share

I’m a runner, writer, dog-mom, and self-proclaimed hot sauce connoisseur.

I’m also a survivor raising awareness daily about the devestating effects of blood clots.

Words To Run By

My story is not that different than anyone else. I graduated from college, started my first real job as a child welfare caseworker – a field completely unrelated to my degree, of course. I got married on 07/07/07 and we adopted two dogs – Grace and Sadie. Back then, I would have told you I lived a great life, until I discovered – and not without a whole lot of things going really wrong first – that there is more to life and more to me. I wanted more, I needed more, but I had no idea where or with what to start.  Continue reading

The Clot Must Be Fought – Our Stories


The Clot Must Be Fought

So many lives….so many stories… Other survivors share:

Our Stories @ The Clot Must Be Fought

Affairs Of The Heart


Blood Is Thicker Than....

Blood Is Thicker Than….

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As we celebrate love’s ‘holiday’ tomorrow, remember that it’s all an affair of the heart and blood is thicker than water….

and for some, our own lifesourcefights our very existence it supports.

We are strong!We are SURVIVORS!!! ♥

 

Go Red For Women ♥ American Heart Association

Power To End Stroke

Stop The Clot

 

I’m A Survivor!!!!


My current battle with my genetic clotting disorder..I survived!!!

Christmas Day 2012:

Just barely three weeks ago…I cheated death by surviving the coroner’s ‘bread and butter’. I threw a saddle clot which stopped my heart for an unknown amount of time…but merely seconds on a clock. This disease/disorder/deficiency will eventually kill me unless human accident gets me first. I’m trying to find others to gather with me in searching for more answers to many unknown questions and alternative preventative treatments. If not a cure in my lifetime, than a cure for my son and his unborn children….Please help me in the fight against this silent killer

Post PE precautions where in order ESPECIALLY when the Orkin man showed up for his monthly visits at my work facility…

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This is my original story:

 I am 2nd generation ATIII Congenital having my first DVT/VTE at age 19 which wasn’t diagnosed immediately as I was pregnant at the time. It wasn’t until after the delivery of my son and only after the insistent urging of my mother, that the possibility of my having this at that age was grudgingly given in too and after a very painful venogram, was finally diagnosed and was not just venous, but arterial. Why was my mother so insistent about what it was? It was because she had lived with recurring DVT/VTE’s for over half her life with her first being diagnosed directly after having given birth to me. My mother was the first generation, having skipped a generation through my grandfather. My sister is also an active ATIII Congenital. As of two weeks ago, I thought the only worry or concern I would have would be that any future granddaughters of mine would someday become active through my son, as in the years that I have researched ATIII the most common and recurring thread is that, usually, men are carriers not actively diagnosed. That has all now changed as of June 6, 2011 when my 22 year-old son was rushed to the emergency room for the third time in just as many days. He, once again, had a CT scan done of his head which revealed something perplexing to the physicians. The doctors were stumped until I arrived at the hospital where he had been taken and told them about our family genetic disorder. The final diagnosis was cerebral sinus venous thrombosis and accompanying brain bleed concurrent with stroke and  seizures secondary to ATIII Congenital. He too has now been tested and diagnosed with ATIII Congenital.