More than 175 thrombosis and cardiovascular societies, associations and federations strong (and counting) in 60 countries are participating in World Thrombosis Day
First I HAVE to say “Thank You” for not only for bringing medical awareness and offering education on Thrombotic disorders, issues, and treatments on a global scale to Healthcare providers, but in that the same was offered to DVT/PE patients as well.
I was an attendee of the free DVT/PE webinar sponsored by three nonprofit organizations whose missions are dedicated 100% to clotting/thrombotic/emobolitc research, information, support, and advancement in their training of awareness and education. The physician was very informative, while at the same time, for me, it was also comprehendable. There were several topics covered within the presentation itself that had been concerns of mine. At the conclusion, there was an allotted time for any additional questions and/or concerns by the attendees. There were several good inquiries from a wide spectrum of topics, yet he answered each one of them in turn. I was very impressed with this opportunity, and would hope there may be more to come in the near future.
My current battle with my genetic clotting disorder..I survived!!!
Christmas Day 2012:
Just barely three weeks ago…I cheated death by surviving the coroner’s ‘bread and butter’. I threw a saddle clot which stopped my heart for an unknown amount of time…but merely seconds on a clock. This disease/disorder/deficiency will eventually kill me unless human accident gets me first. I’m trying to find others to gather with me in searching for more answers to many unknown questions and alternative preventative treatments. If not a cure in my lifetime, than a cure for my son and his unborn children….Please help me in the fight against this silent killer
Post PE precautions where in order ESPECIALLY when the Orkin man showed up for his monthly visits at my work facility…
This is my original story:
I am 2nd generation ATIII Congenital having my first DVT/VTE at age 19 which wasn’t diagnosed immediately as I was pregnant at the time. It wasn’t until after the delivery of my son and only after the insistent urging of my mother, that the possibility of my having this at that age was grudgingly given in too and after a very painful venogram, was finally diagnosed and was not just venous, but arterial. Why was my mother so insistent about what it was? It was because she had lived with recurring DVT/VTE’s for over half her life with her first being diagnosed directly after having given birth to me. My mother was the first generation, having skipped a generation through my grandfather. My sister is also an active ATIII Congenital. As of two weeks ago, I thought the only worry or concern I would have would be that any future granddaughters of mine would someday become active through my son, as in the years that I have researched ATIII the most common and recurring thread is that, usually, men are carriers not actively diagnosed. That has all now changed as of June 6, 2011 when my 22 year-old son was rushed to the emergency room for the third time in just as many days. He, once again, had a CT scan done of his head which revealed something perplexing to the physicians. The doctors were stumped until I arrived at the hospital where he had been taken and told them about our family genetic disorder. The final diagnosis was cerebral sinus venous thrombosis and accompanying brain bleed concurrent with stroke and seizures secondary to ATIII Congenital. He too has now been tested and diagnosed with ATIII Congenital.
Pulmonary embolism (PE) is a blockage of the main artery of the lung or one of its branches by a substance that has travelled from elsewhere in the body through the bloodstream (embolism). PE most commonly results from deep vein thrombosis (a blood clot in the deep veins of the legs or pelvis) that breaks off and migrates to the lung, a process termed venous thromboembolism(VTE). A small proportion of cases are due to the embolization of air, fat, talc…
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