Celebrating Blood Clot Awareness Month by celebrating those who have been with me from the beginning of THIS recovery. Who have been your touch stones through thick and thin, dark and light, tears and laughs, anger and joy. Although just some of my “Sister Strong Survivors” and my son (of course), I celebrate ALL my fellow survivors… For you are strong, able, and loved. Remember… Life is for Living ~ Not Just Surviving…
Live every moment – love every day
‘cus before you know it your precious time slips away.
Live every moment – love every day
’cause if you don’t you might just throw your love away.
I walked for seven miles this mornin’. footprints in the #sand.
#Washed away without a warning when the water hit the land.
But I will #walk on ’til I can no longer stand.
I’ll take you by the #hand and we’ll…
More than 175 thrombosis and cardiovascular societies, associations and federations strong (and counting) in 60 countries are participating in World Thrombosis Day
First I HAVE to say “Thank You” for not only for bringing medical awareness and offering education on Thrombotic disorders, issues, and treatments on a global scale to Healthcare providers, but in that the same was offered to DVT/PE patients as well.
I was an attendee of the free DVT/PE webinar sponsored by three nonprofit organizations whose missions are dedicated 100% to clotting/thrombotic/emobolitc research, information, support, and advancement in their training of awareness and education. The physician was very informative, while at the same time, for me, it was also comprehendable. There were several topics covered within the presentation itself that had been concerns of mine. At the conclusion, there was an allotted time for any additional questions and/or concerns by the attendees. There were several good inquiries from a wide spectrum of topics, yet he answered each one of them in turn. I was very impressed with this opportunity, and would hope there may be more to come in the near future.
CHAPEL HILL, N.C., Oct. 9, 2014 /PRNewswire-USNewswire/ — While the world’s top two cardiovascular killers – heart attack and stroke – are global health priorities, the No. 3 killer, venous thromboembolism (VTE) or blood clots in the leg and lungs, has remained largely unaddressed and under-recognized by the public, according to the most comprehensive scientific review of the global burden of VTE ever undertaken and a global public survey. To address this disconnect, the International Society of Thrombosis and Haemostasis (ISTH) is leading a global effort together with more than 175 health/medical and patient organizations around the world to launch World Thrombosis Day (WTD), focused initially on increasing public and health professionals’ awareness of potentially deadly blood clots in the leg and lungs, the risk factors, symptoms and the importance of prevention.
Yeah…so proud I’m leaking out of my eyes!! He’s made it safely to NYC and I am now just waiting for the text/call letting me know he’s at the apartment that just so happened to open up two weeks early. So no couch hopping for the next 15 days either!! I gotta get a kleenex…THIRD GENERATION SURVIVOR!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
This was my exact post last year on August 23, 2013. I’d just attended his University commencement less than two weeks before. He’d still managed keep up his studies, work a full time job, complete all his therapies post-stroke and still graduate within a just a mere semester later than planned. Then he was on to the next phase of what I secretly refer to as “Royal’s Reign”.
In ‘celebration’ of the pivotal one year landmark post stroke, a much anticipated, hard earned, very much deserved trip was taken. As a media student, there was a definitive destination for this adventure: NYC!!! Within that one week, he feel totally in love with it. On returning home, he worked like a madman to obtain his next plan of action. He was going to go back to the city he had so desperately fallen in love with, make his presence known, and, in time, reign over ‘his’ Empire.
You see, his entire outlook had changed. Not just on one, but on so many levels. Dreams, aspirations, achievements, and Life as a whole became opportunities to be grasped with both hands. There was no time for regrets. Regrets, for him, became defined as opportunities not taken.
It’s now nearly a year since he left middle America for the largest city in the US. In this year, his accomplishments have been many, and his star has risen rapidly. Not that it’s been without it’s difficulties and sacrifices, but it has been amazing!
As a mom, he makes me more proud than words can express, he gives me more reasons to gush and brag than should (and probably is) be tolerated, but most of all, he continues to awe and inspire me daily. Operation “Royal’s Reign”, although still in progress, has, to date, been a completely and utterly successful undertaking and I’m confident it will continue to be until it’s fully achieved!
♦♥ Royal’s Related Links:♣♠
A Mother’s Story: I reflect and share my son’s stroke experience from my point of view on the two year anniversary of the event.
I don’t usually actually “watch” late night TV as much as listen to it while staying busy with other things, but tonight during The David Letterman Show I realized it was Ms. Williams that he was interviewing. Yes, she’s an incredible athlete, but that wasn’t what caught my attention. Here she speaks about her recent health issues and on a side note how it affected her mentally as well. Here is the link to the entire interview, but the point in case begins around the 8:25 mark. Follow this link to listen to the shorter version and begins at this point:
Andrew was an active participant with his local The Color Run 5k in which I had trained to join him in what I had dubbed a celebration/survivor run, Unfortunately, I was slowed down considerably after experiencing a pulmonary embolism Christmas Day 2012.
In everyone’s life there are milestones, that 16th birthday, a first kiss, high school graduation, marriage, are the first that come to mind immediately. Yet, the most significant, memorable, and life changing for me was the birth of my son. I won’t go into detail as I wouldn’t want to deter or scare off any would-be or expecting mothers, so I’ll just say my pregnancy was atypical and my son was my miracle.
My current battle with my genetic clotting disorder..I survived!!!
Christmas Day 2012:
Just barely three weeks ago…I cheated death by surviving the coroner’s ‘bread and butter’. I threw a saddle clot which stopped my heart for an unknown amount of time…but merely seconds on a clock. This disease/disorder/deficiency will eventually kill me unless human accident gets me first. I’m trying to find others to gather with me in searching for more answers to many unknown questions and alternative preventative treatments. If not a cure in my lifetime, than a cure for my son and his unborn children….Please help me in the fight against this silent killer
Post PE precautions where in order ESPECIALLY when the Orkin man showed up for his monthly visits at my work facility…
This is my original story:
I am 2nd generation ATIII Congenital having my first DVT/VTE at age 19 which wasn’t diagnosed immediately as I was pregnant at the time. It wasn’t until after the delivery of my son and only after the insistent urging of my mother, that the possibility of my having this at that age was grudgingly given in too and after a very painful venogram, was finally diagnosed and was not just venous, but arterial. Why was my mother so insistent about what it was? It was because she had lived with recurring DVT/VTE’s for over half her life with her first being diagnosed directly after having given birth to me. My mother was the first generation, having skipped a generation through my grandfather. My sister is also an active ATIII Congenital. As of two weeks ago, I thought the only worry or concern I would have would be that any future granddaughters of mine would someday become active through my son, as in the years that I have researched ATIII the most common and recurring thread is that, usually, men are carriers not actively diagnosed. That has all now changed as of June 6, 2011 when my 22 year-old son was rushed to the emergency room for the third time in just as many days. He, once again, had a CT scan done of his head which revealed something perplexing to the physicians. The doctors were stumped until I arrived at the hospital where he had been taken and told them about our family genetic disorder. The final diagnosis was cerebral sinus venous thrombosis and accompanying brain bleed concurrent with stroke and seizures secondary to ATIII Congenital. He too has now been tested and diagnosed with ATIII Congenital.
Pulmonary embolism (PE) is a blockage of the main artery of the lung or one of its branches by a substance that has travelled from elsewhere in the body through the bloodstream (embolism). PE most commonly results from deep vein thrombosis (a blood clot in the deep veins of the legs or pelvis) that breaks off and migrates to the lung, a process termed venous thromboembolism(VTE). A small proportion of cases are due to the embolization of air, fat, talc…
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