I’m A Survivor!!!!


My current battle with my genetic clotting disorder..I survived!!!

Christmas Day 2012:

Just barely three weeks ago…I cheated death by surviving the coroner’s ‘bread and butter’. I threw a saddle clot which stopped my heart for an unknown amount of time…but merely seconds on a clock. This disease/disorder/deficiency will eventually kill me unless human accident gets me first. I’m trying to find others to gather with me in searching for more answers to many unknown questions and alternative preventative treatments. If not a cure in my lifetime, than a cure for my son and his unborn children….Please help me in the fight against this silent killer

Post PE precautions where in order ESPECIALLY when the Orkin man showed up for his monthly visits at my work facility…

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This is my original story:

 I am 2nd generation ATIII Congenital having my first DVT/VTE at age 19 which wasn’t diagnosed immediately as I was pregnant at the time. It wasn’t until after the delivery of my son and only after the insistent urging of my mother, that the possibility of my having this at that age was grudgingly given in too and after a very painful venogram, was finally diagnosed and was not just venous, but arterial. Why was my mother so insistent about what it was? It was because she had lived with recurring DVT/VTE’s for over half her life with her first being diagnosed directly after having given birth to me. My mother was the first generation, having skipped a generation through my grandfather. My sister is also an active ATIII Congenital. As of two weeks ago, I thought the only worry or concern I would have would be that any future granddaughters of mine would someday become active through my son, as in the years that I have researched ATIII the most common and recurring thread is that, usually, men are carriers not actively diagnosed. That has all now changed as of June 6, 2011 when my 22 year-old son was rushed to the emergency room for the third time in just as many days. He, once again, had a CT scan done of his head which revealed something perplexing to the physicians. The doctors were stumped until I arrived at the hospital where he had been taken and told them about our family genetic disorder. The final diagnosis was cerebral sinus venous thrombosis and accompanying brain bleed concurrent with stroke and  seizures secondary to ATIII Congenital. He too has now been tested and diagnosed with ATIII Congenital.

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4 thoughts on “I’m A Survivor!!!!

  1. You really make it seem so easy with your presentation but
    I find this topic to be actually something that I think I would never understand.
    It seems too complicated and extremely broad for me. I’m
    looking forward for your next post, I’ll try to get the hang of it!

    Liked by 1 person

    • If it’s any consolation, as a 45 year survivor, I STILL wouldn’t presume to say I totally understand it myself and probably never will. Every day I continue to learn some new aspect of what IS a broad topic that, unfortunately, so there’s little concrete information for.
      Each survivor’s experiences are unique and as individual as the person themselves, yet we have all share the commonality in that, for reasons unknown, we survived. We share our stories, discuss our recovery issues, and support each other on our journies on the path of the unexpected and unknown of lives suddenly and drastically changed in the blink of an eye.
      The one thing I DO know is that I’m no longer alone in this fight anymore. I’ve been blessed over the last 18 months in that I’ve found others along the way. We now walk this road together and are continuously learning with each step we take. We then are always sure to pass the information on so that those behind us know what to expect.
      Hang in there with me… I’m just a student sharing her lessons with the class so we can all pass. 📓⭐📒⭐📗⭐

      Like

    • Oswaldo ~
      My latest project is going through my blog from it’s beginning. In doing so, I have found many details and items that I was lax and uneducated in. One of those not only being in replying to comments and feedback, but just in realizing there had even been any as I didn’t know my way around yet. I am doing my best in correcting this, thus the reply. Thank you for visiting and taking time out to do so. If there are any topics or additional information that you would like to see featured here, just let me know as I’ve finally gotten at least this detail in check. I would be very happy to receive your input.

      Thank you ~
      willoweagle

      Like

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